Well, first things first, we had an absolutely fabulous weekend.
Bad first… Friday…
Friday could have gone… better. I had an appointment in Middletown with the endocrinologist we found. He travels into Port Jervis for appointments so he’d be the closest endo. around (actually, almost the *only* endo. around). They did all the usual prelim. stuff though surprised me by measuring around my waist (?). I’ve never had a dr’s office do that before. Not even my ob yet. I mentioned to the nurse that it wouldn’t be accurate, since I’m pregnant (I’m not really showing, but things have “moved”). When Dr. Friedman came in, I had an instant feeling of wariness from him. I tried to ignore it and be as forthcoming with information about myself, my disease, experiences, training, and past as I could. I explained that because I’m pregnant I didn’t want to change any of my insulin regime and mess around with things. It’s not safe, and things are working really well as is. He seemed to hear me and continued jotting things down on his pad. He asked when the last time was I’d seen an endo and I said it’d been about 10 years. He looked surprised and I explained that I was trained, since diagnosis (7 years before that) on how to monitor and control my diabetes. He tried to explain that “things have changed in treatment in the past year, let alone 10 years!”. I was surprised at his tone and asked what? Well, he said, we’re now treating by measuring carbohydrate intake. Yes, yes, I said, I’ve been trained in carb counting since I was a kid. He informed me that I’d have to go to an education program at the local hospital (8 visits, 13 hrs total). I explained that I’m not sure I wanted to do that, at which time he looked me directly in the eye and said with no uncertain tone that he “would not treat me unless I did”. I’m sorry, but I don’t like being strong-armed by my doctor! He then looked at my eyes. He told me I’ve got some mild retinopathy. This surprised me, since I’ve never had any eye problems. Granted my last Opthamologist appointment was a few years ago, but I’ve been doing pretty well during that time. I was scared, at first, since retinopathy can advance with pregnancy. He said I should contact Dr. ___ or Dr. ___ and get an appointment asap. If I couldn’t get one soon, I’m to call him and he’ll take care of it. They’re Retinologists in Middletown. I wondered to myself how he’d be able to notice these “minor background changes” he claimed to see, since he’s never seen me before and wouldn’t know what my retinas looked like “normally”, but I’m going to make the appointment regardless. I’ve wondered, since then, if he was trying to scare me into “submission”. If you can’t tell by now, I don’t trust him.
Next we went into his office where he informed me that he’d be switching my insulin to Lantus and Novolog. He explained how Lantus worked (I already know how, since Donnie went to see him a few weeks ago and was switched to it). He asked what I was on and when I said “Regular” he was confused. He’d never heard of it. He looked it up, and exclaimed “Oh! R insulin!” Well yeah, duh! I’d even shown him my needle, which says on the side “Toronto” (Regular). Retard. So he gave me some insulin to get me started, some forms to take to my “education”, a form to record my tests at times I don’t normally blood test and to fax to him “periodically”. Apparently he’s been to my house and knows all about my fax machine. *eyes rolling* He gave me the names and numbers of the retinologists, had them draw some blood to test my thyroid functions (because thyroid problems can go hand in hand with diabetes, and undiagnosed ones can cause pregnancy problems…. and apparently I’ve never seen a competant dr who’s tested for those things before, a-hyuck), and sent me to schedule an appt. for a month later. I mentioned earlier to him that seeing so many doctors so often, after not seeing a dr save for my yearly physical, was a bit outside my norm and it’s been hard to adjust to. He brushed that off, too and informed me that he’d be seeing me monthly. Thankfully his appointment girl wasn’t scheduling for the dates he wanted (yet) for Port Jervis, so she told me to call in a few weeks. She had one appointment available, but it was 8am. I asked if they had anything later in the day and she explained that they start with the first appointment and work forward as more appointments are scheduled. NO exceptions.
Suffice it to say, he’s insane if he thinks I’m going to allow him to treat me. I won’t be strong-armed. This is *my* body, and *I’m* the one who makes the final decisions on what goes in, what comes out, and how it’s treated. I’ve been doing great treating my own diabetes. My hbA1c was at 7.3 (3 month average, so it was a bit higher since it was pre-pregnancy numbers) which is perfectly fine. I’ve got no complications (though we’ll find out about the retinopathy – I’ll follow through on that) and this after being diabetic for 18 years! Even if I did have retinopathy, there’s not much that can be done to treat it other than keeping my sugar’s in check, which I do anyways. Bugger him.
I hope Dr. Miller understands. I think she will, given how scary he was to *me*. I think she was relieved, too, when she saw that my sugars were so well under control despite me not being treated by any doctor. We’ll see in a month.
Oh, I forgot to mention. The insulins he ordered me to start… Novolog and Lantus. I’ve used Humulog before (stopped because it was too expensive and my prescription drug coverage ended) and Novolog is the same thing. No big deal, though the doses he wanted me on were *way* too high and would have sent me constantly, and dangerously low. However, the Lantus is what’s really scary. Ken and I checked out the Lantus website friday night. They did studies between people who were on NPH (what I’m on now) and then who switched to Lantus. Their hbA1c’s were lower on NPH! They also state, in very plain english, that pregnant women should not, under any circumstances, change to Lantus. It’s dangerous for a pregnant woman to bugger with her insulin too much, and when you change insulin types there’s a lot of learning-curve going on. Given that the pregnancy has altered how my body reacts to insulin/food, I certainly don’t need yet another factor messing things up!